1st SYSTEMIC SCLEROSIS WORLD CONGRESS

PATIENT PROGRAMME
Thursday, February 11, 2010
13.30-18.00	Congress for the doctors. This begins with a talk by Professor Dame C Black on « Scleroderma : History and Prospects ». All registered patients are welcome to attend.

Friday, February 12, 2010
09.00	FESCA team arrives at desks, to enrol and guide patients to talks. Once registered, patients may move between rooms A&B at will. Patients may attend medical sessions.
10.00	CONFERENCE BEGINS WITH WELCOME IN ROOM A FOR BOTH GROUPS

Room A - Chair: Dr. Daniel Furst
10.00-10.10	D Furst	Welcome
10.10-10.15	A Tyrrell Kennedy	Introduction & Housekeeping
Start of lectures: 10.20-11.00 11.00-11.45	. F Wigley J Van Laar	. Raynaud's Disease+Q&A Treatments for Systemic Sclerosis+Q&A
11.45-12.15	COFFEE AND STRETCHING BREAK
12.15-13.00	J Seibold	Cardiovascular issues in Systemic Sclerosis+Q&A
13.00-14.00	LUNCH BREAK

Room B - Chair: Ann Tyrrell Kennedy
10.20-11.00	C Denton	Renal complications in Systemic Sclerosis+Q&A
11.00-11.45	Y Allanore	Musculoskeletal issues+Q&A
11.45-12.15	COFFEE AND STRETCHING BREAK
12.15-13.00	R Silver	The Lungs in Systemic Sclerosis+Q&A
13.00-14.00	LUNCH BREAK

Room A - Joint Sessions
14.00-14.45	L Czirjak	Gastro-Intestinal tract + Q&A
14.45-15.05	B Garay-Toth, FESCA VP	Living with Scleroderma
15.05-15.25	E Furst, R.N., M.A.	Coping with Chronic Disease
15.25-16.00	PANEL DISCUSSION TO ANSWER PATIENT QUESTIONS (hand in written questions) C Denton J Van Laar F Wigley E Furst, R.N., M.A. B Garay-Toth
NOTE : Q&A refers to Question and Answer. Only written questions will be admitted. Paper will be provided and written questions collected by volunteers. No roving microphones.

Saturday, February 13, 2010
10.00-15.00	2010 FESCA Annual Assembly (FESCA representatives only)
15.00-16.00	Presentation by Scleroderma Society of Canada, with data from a recent patient survey. Speaker: M Sauvé. Open discussion regarding collaboration by groups around the world.